The Day I Met Down Syndrome

Linking up with the wonderful T21 Traveling Afghan Project again this week. (The last 3 weeks have involved attending a conference, flying to Boston, renovating our kitchen, all three of us coming down with colds, prepping the yard for summer…and the next 2 weeks aren’t looking any quieter! I’m grateful for these writing prompts!) This […]

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If Someone Had Only Told Me…

Today I’m participating in a blog hop with the T21 Traveling Afghan Project. If you don’t know about this project, check it out. The momma who runs it is equally down-to-earth and hilarious – and one heckuva crocheter. The topic is “If Someone Had Only Told Me…” This is interesting for me because I was […]

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Forever

They didn’t have you where I come from, Never knew the best was yet to come. Life began when I saw your face And I hear your laugh like a serenade. How long do you want to be loved? Is forever enough, is forever enough? How long do you want to be loved? Is forever […]

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Stamina

I hear a lot how “strong” I must be to be raising a child with Down syndrome. I’m not really sure what that means. There seem to be a lot of implications in that little statement. I’ve never been one to agree with that. I mean, I didn’t get a superhero cape along with Rowenna’s […]

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Memphis

Over the weekend, we made a trek down to Memphis. It’s a bit of a haul for a short stay but it’s always worth it. We had an absolute blast. It was a barbecue-fueled, sunshine-filled mad dash around Memphis. We went to the gardens, the farmers market, rode a trolley, browsed through an amazing international […]

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Hopes vs Expectations

There’s been an interesting online discussion lately about hopes versus expectations for kids with Down syndrome. Like any group of parents, there are many schools of thought about how best to raise a child with Down syndrome. Some advocate for lots of therapies and supplements. Some advocate for a wholly natural environment of few-to-none therapies […]

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Where Rowenna Plays

Call me hyper-organized, but I like things to have a home. That way I can (usually) find what I need unless hubby put it away – but he does have an excellent memory so if he thinks of a more creative spot for something, he always remembers what it is. As Rowenna’s pile of toys […]

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The Pain in the Heart

I’ve hesitated to write this, but when I think of other mommas who might be out there thinking the same thing, I feel like I need to share this. I have a very, very dear friend whose daughter is 2 months older than Rowenna. My friend is endlessly patient, kind, gentle. She constantly seeks to […]

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Naw Rúz and World Down Syndrome Day

All around the world, Bahá’is are celebrating Naw Rúz today. They are gathering as families and communities, praying, and breaking the fast together. (You really haven’t seen a party until you’ve seen a group of people breaking a fast! They are in a great mood.) Today is another worldwide celebration – World Down Syndrome Day. […]

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Baha’i Faith: Day 19

We’ve reached the final post of my little project. This has been an interesting few weeks – in some ways I feel even closer to my faith, in other ways I have been reminded there are still a few struggles for me in the faith. I thought long and hard about whether or not to […]

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