Nearly 8 years ago, I promised hubby in my wedding vows that no matter where we lived and no matter our circumstances, he would always have a home. For me, home is not really a place, a physical spot, a hook to hang your hat. It’s a feeling of belonging that can be created no […]
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Call to Action: ABLE Act
See this lovely little girl? I would love to save for her future, just like parents across the country save for their children. The problem is the way our service system currently works. If she comes into more in cash assets than the federal government allows, she will be stripped of her access to Medicaid […]
Sucker Punch(es)
A post in which we receive some very unexpected news. We’ve tried to create a team with the people who work with Rowenna at both schools. I regularly speak with her teachers and therapists, we use the communication notebook to some extent, and I am at every drop off and pick up possible to remain […]
Blog Hop January 2014
It’s time for another blog hop with my fabulous fellow bloggers. Links to other writers participating in the hop can be found at the bottom of this post. As always, it’s a truth, a tip, and a picture. A truth: When you have a kid with Down syndrome, strangers are going to say things to […]
When There Are No Words
So I had a post pre-emptively written to put up for the holidays, I just needed to drop in a few pictures from our celebration and hit “publish.” But as it turns out, that’s not going to happen this year. Something’s been changing for Rowenna over the last few months and we’re not 100% sure […]
So Big
I’ve officially entered the third trimester and an unexpected feeling has crept up on me. Rowenna is so big. I look at the tiny onesies we’re washing and putting away, the itty bitty hats I’ve knitted and set aside for Little Sister’s first days in the world, and I am overwhelmed by how big my […]
Shaken
Something happened today that left me reeling and I can’t get this single thought out of my mind: “What if that had been Rowenna?” On my way to pick her up from school, I saw someone on the side of the road, very obviously hurt in some way. The cars in front of me all […]
Glee Gets it (Mostly) Right
This week, Glee aired an episode (Movin’ Out) that featured a Becky Jackson plot line. The episode featured several characters talking about their post high school plans. As always, most of this was handled with a certain amount of absurdity (one of the characters is up for the Channing Tatum Former Stripper scholarship – I […]
Dignity
A lot of doors open to you in Disability World. Sometimes I like what I see behind them – people with big hearts, open arms, a desire to really know you. Sometimes I want to slam the door shut on the ugliness I find. Sometimes I find something I’m not quite sure how to handle, […]
A Little Bit about NDSAN
In 1975, Robin and David Steele visited a group home for children with disabilities and met 3 year old Martha Ann. At the time, they knew little about the adoption process, and even less about Down syndrome, but they knew Martha would one day be part of their family. Over time, the couple eventually adopted […]
