This post is long. I completely understand if you don’t make it to the end. I’ve had a post like this on my mind for the last 6 months so I’ve had a lot of time to talk about it. Then I read an amazing blog post and decided it was time to finally write […]
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Big Beautiful Eyes
Rowenna had her first ophthalmology appointment today. There is a strange feeling that goes along with parenting a child with Down syndrome. It’s sort of this “waiting for the other shoe to drop” thing. There are a lot of health concerns that can come with this extra little chromosome. There’s really no way to know […]
Weekend Round-Up
We had quite the weekend and some fun firsts for Miss Rowenna! First off, an overnight visit to my parents where we tried a dissolvable puff for the first time. (After several shopping trips to look for gluten-free puffs.) Rowenna has mixed feelings on them, but my momma heart swelled with pride to see her […]
A Girl and Her Cat
We have a cat named Jax. He’s quite the unique little cat. We picked him out from the shelter to be a best friend for a cat who is no longer with us. “Give us the friendliest cat you have,” we said. “Give us the cat that never wants to be alone.” That’s exactly what […]
Wisdom of Winter
Brr…it’s cold! It’s just about this time of year when I think back on the conversation with hubby that went something like this: Me: “Hubby, this is the furthest north I will ever live.” Hubby: “Well, this is the furthest south I will ever live.” Me: “Oh. Well, then you’re responsible for shoveling the driveway.” […]
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I’m going to brag on hubby for a little bit here. It’s his birthday and we’re doing the usual – presents and cake. But I wanted to take it all a step further and share just how wonderful this man is. Hubby is patient and calm. His words are few but when he does speak, […]
Packing
I had a major fit of cabin fever today. It was -1 degree outside (yes, actual temp) so going outside was absolutely not an option. Rowenna has a little cold and yesterday we spent the entire day in our jammies, all snuggled up in the bed. Today she is no better and she spent the […]
A Test…and The Future
My mom and I talk a lot about the ethics of medicine. (Yeah, strange hobby.) Has medicine surpassed what our consciences and hearts would otherwise tell us to do? Is there such a thing as “too much” intervention? Do our treatments do more harm than good? What is the value of a life and who […]
Kelle Hampton
Kelle Hampton is a little bit of a celebrity in the Down syndrome world. I’ll be honest – I’m not 100% sure how that happened so I don’t have a good story about why she rocks other than to say that this woman, in fact, totally rocks. (I’m willing to bet this “celeb status” is […]
Well Baby
Today Rowenna had a well baby doctor appointment. Baby girl is lookin’ good! Ya Baha’u’l-Abha! I am totally in love with her pediatrician. It hit me today how absolutely lucky we have been to have her pediatrician and her cardiologist. I have heard absolute horror stories about how little ones with Down syndrome are treated […]
