I hear a lot how “strong” I must be to be raising a child with Down syndrome. I’m not really sure what that means. There seem to be a lot of implications in that little statement. I’ve never been one to agree with that. I mean, I didn’t get a superhero cape along with Rowenna’s […]
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Memphis
Over the weekend, we made a trek down to Memphis. It’s a bit of a haul for a short stay but it’s always worth it. We had an absolute blast. It was a barbecue-fueled, sunshine-filled mad dash around Memphis. We went to the gardens, the farmers market, rode a trolley, browsed through an amazing international […]
Hopes vs Expectations
There’s been an interesting online discussion lately about hopes versus expectations for kids with Down syndrome. Like any group of parents, there are many schools of thought about how best to raise a child with Down syndrome. Some advocate for lots of therapies and supplements. Some advocate for a wholly natural environment of few-to-none therapies […]
Where Rowenna Plays
Call me hyper-organized, but I like things to have a home. That way I can (usually) find what I need unless hubby put it away – but he does have an excellent memory so if he thinks of a more creative spot for something, he always remembers what it is. As Rowenna’s pile of toys […]
The Pain in the Heart
I’ve hesitated to write this, but when I think of other mommas who might be out there thinking the same thing, I feel like I need to share this. I have a very, very dear friend whose daughter is 2 months older than Rowenna. My friend is endlessly patient, kind, gentle. She constantly seeks to […]
Naw Rúz and World Down Syndrome Day
All around the world, Bahá’is are celebrating Naw Rúz today. They are gathering as families and communities, praying, and breaking the fast together. (You really haven’t seen a party until you’ve seen a group of people breaking a fast! They are in a great mood.) Today is another worldwide celebration – World Down Syndrome Day. […]
Blossom
My girl is learning how to play. Up until a month or two ago she was very much an observer. Very, very curious (her nickname around here is “Nosy Rosy”) – but content to just sit near other kids and play, or wait until someone had abandoned a toy so she could take a closer […]
Developmental Age
For a while now, hubby and I have been feeling increasingly…ooky about developmental assessments and developmental age. Rowenna has had 3 formal developmental assessments. At first, this was something to cling to. We didn’t know much about child development or about our parenting style. For the first 4 months of her life, our goal was […]
Whatever is Done in Love
Sometimes life gets a little crazy in our house. Sometimes it’s easy to lose sight of what is most important. I’d like to share something that helps me stay on track, especially where Rowenna and hubby are concerned. A quote from the Baha’i faith gets me back to where I need to be. And I’ve […]
What Can You Do?
A very dear friend of mine had an interesting interaction at work. She has a framed picture of our two kiddos on her desk and someone came around to ask her about it. That person said it was sad Rowenna has Down syndrome, and my friend told her that it isn’t sad, Rowenna is great. […]
