I’m a planner. A list-maker. A logistics kind of gal. It’s how I control chaos in my life and how I cope with change. If something unexpected comes along, the rest of my ducks are in a row so it’s easier for me to handle the new situation. Then my sweet girl came along, and […]
Tag Archives | Down syndrome
The Single Story
Over the weekend I graduated from my Partners in Policymaking course. It was six months of training in political advocacy – at turns exhilarating, tedious, heart-wrenching. On our last day, we watched a TED Talk from Chimamanda Adichie about the danger of a single story. She doesn’t talk about disability specifically, but what she says […]
It Could Be Worse…
Blog hopping today over at With a Little Moxie. This week’s prompt is to talk about a phrase that really gets under your skin. Be sure to check out the other entries in the hop – this is not limited to just bloggers who have a Down syndrome connection, it’s open to any disability-related bloggers. […]
Two Year Check-Up
Rowenna has now had her second birthday party and her official two year well-baby visit. So, what are the vital stats for this kiddo? 24 pounds, 6 ounces and 33 inches of perpetual motion an infectious smile and a goofy little laugh walking with a push toy, standing without using anything for support or balance […]
Second Birthday
My sweet girl turns two today. I spent the night before her birthday reading through old blog posts and watching the video montage from her first birthday, in tears at how big she’s gotten and how big my heart has grown since she joined our family. I am amazed at how far we’ve come this […]
The State of Down Syndrome Today
Folks, it’s a double blog hop post today. I’m hopping with the T21 Traveling Afghan Project again, and a Special Needs and Disability blog hop hosted by With a Little Moxie. I’m using the prompt from the traveling afghan project, and if you’re interested in my connection to disability (the prompt for the other blog […]
Why It Matters
A few months ago, I wrote a post about using People First language. Sometimes this is seen as being nit-picky or too politically correct. You’re entitled to your opinion, of course, as I am entitled to mine. But here’s the thing – there’s a reason this stuff matters. It’s not about being politically correct, it’s […]
The Day I Met Down Syndrome
Linking up with the wonderful T21 Traveling Afghan Project again this week. (The last 3 weeks have involved attending a conference, flying to Boston, renovating our kitchen, all three of us coming down with colds, prepping the yard for summer…and the next 2 weeks aren’t looking any quieter! I’m grateful for these writing prompts!) This […]
If Someone Had Only Told Me…
Today I’m participating in a blog hop with the T21 Traveling Afghan Project. If you don’t know about this project, check it out. The momma who runs it is equally down-to-earth and hilarious – and one heckuva crocheter. The topic is “If Someone Had Only Told Me…” This is interesting for me because I was […]
Forever
They didn’t have you where I come from, Never knew the best was yet to come. Life began when I saw your face And I hear your laugh like a serenade. How long do you want to be loved? Is forever enough, is forever enough? How long do you want to be loved? Is forever […]
