Sometimes I wonder if I’m rubbing off on Rowenna at all. She is so much her daddy’s girl. I see it all the time – a certain gleam in her eye, her ability to problem solve, her mellow, laid-back personality. Given a choice, she’ll happily sit with her dad. She is definitely not one of […]
Tag Archives | Down syndrome
Guest Post
I’m guest-posting over on With a Little Moxie today. It’s week 4 of the Down syndrome awareness blog hop, so be sure to scroll down to the bottom of the post and read other entries in the hop. Lots of good stuff there! In Rowenna news, things are going well. She attends the full morning […]
If I Knew Then
Blog-hopping with the T21 Writer’s Alliance today. Check out With a Little Moxie for the others participating in this week’s hop. The prompt for this week is “If I Knew Then What I Know Now.” This is something that comes up a lot in disability world, especially as we try to help families understand a […]
A Month In
Today was Rowenna’s fourth week of preschool. Something happened after our first school visit back in August – the visit I thought had gone wonderfully well. I got a phone call from Ms. T, and by the hesitation in her voice I knew she had something to say I wasn’t going to like. She told […]
Heart Day
Two years ago, I handed my daughter over for open heart surgery. We choose to celebrate this day because while her birthday is the day she left my body, today is the day she started to live. I’ve had people raise an eyebrow at this choice to celebrate, and it recently dawned on me that […]
No Ordinary Boy
A friend sent me her copy of No Ordinary Boy, a non-fiction personal narrative about a mother raising a child with a complex disability. It’s a slim volume, so while Rowenna took a long nap, I settled down to read. It’s a beautiful book – heart-wrenching without being overly sentimental, spare prose offers you a […]
The Rosy Picture
I recently had a brief but thought-provoking exchange with a fellow mom-and-blogger about the curious phenomenon of painting a rosy picture of Down syndrome. Then I read this blog post and wondered how many scared, sad, or lonely parents there are out there. I realized that painting a rosy picture may be doing some damage […]
A Leap of Faith – But Not Really
We’ve made a choice for Rowenna that has been controversial for some and a non-issue for others. I want to talk a little bit about our choice and how we came to this decision. Please bear in mind that these are my personal opinions, and by no means expert opinions, nor are they a judgement […]
Nature Baby
Over the weekend we went camping with my family. It was a great way to relax, and it was a relief to be able to be outside and not feel like we were melting. In fact, we wore sweatshirts most of the weekend and it was a welcome change. There is a peace to being […]
Growing Up
It’s rare to have the opportunity to observe Rowenna in an environment she has spent a lot of time visiting without me. She attends a weekly playgroup run by her Montessori school and because I’ve been so sick, hubby has been taking her. Today was my first session in 5 weeks and what I saw […]
