I’ve been in sort of a funk the last few days and I’ve been trying to pinpoint why. It hit me square in the heart while I was replying to a friend on Facebook about Rowenna’s first birthday party. I think I’m afraid for Rowenna to turn one. She’s finally reached an age where people […]
Tag Archives | Down syndrome
Born This Way
There’s nothin’ wrong with lovin’ who you are she said, ‘Cause He made you perfect, babe. So hold your head up, girl, and you’ll go far, Listen to me when I say: I’m beautiful in my way ‘Cause God makes no mistakes I’m on the right track, baby, I was born this way. Don’t hide […]
A Hard Truth
Something happened last night that I just can’t quite shake. Actually, two somethings happened. I’ve said on several occasions that I don’t want my blog to be political, so I’ll keep this first thing short. We went to a state budget hearing hosted by our representatives and I gave a testimony about the importance of […]
Acceptance and Being OK
I gave a presentation last week at hubby’s school. The students were bright-eyed and eager, their questions genuine. I talked about Down syndrome and the various changes it has brought to our lives. All the while, Rowenna was her pleasant, perky little self and I think overall the students took away a positive message. Their […]
I’m Goin’ to Graceland
The Mississippi Delta was shining Like a national guitar I am following the river Down the highway Through the cradle of the Civil War I’m goin’ to Graceland, Graceland In Memphis Tennessee… I absolutely love that song and will sing it multiple times on any drive to Memphis. Actually, I love that whole album…but you’re […]
Naw Rúz 2011
I haven’t talked about my faith for a little while. It’s a routine part of my life and I sometimes forget to give it the attention it deserves. March 21 is Naw Rúz, the Bahá’i new year, and is always cause for celebration – especially since it marks the end of a 19 day fast. […]
9 Month Questionnaire
Oh boy. So, we’ve been cruising right along with Rowenna. She’s a most happy little girl and I’ve documented for you here all her various adorable skills, like grabbing cat whiskers and blowing raspberries. I’m a first time mom and when I got the Down syndrome diagnosis I literally packed up the developmental books I […]
My Thoughts Exactly
You know, there’s nothing like a 9 month old bundle of pure joy to lift your spirits. It’s been hard around here lately. To think about selling the house you’ve worked so hard to make a home, to think about moving across the country for a job…it’s something I never imagined I would do. I […]
What I Thought I Knew
This post is long. I completely understand if you don’t make it to the end. I’ve had a post like this on my mind for the last 6 months so I’ve had a lot of time to talk about it. Then I read an amazing blog post and decided it was time to finally write […]
Big Beautiful Eyes
Rowenna had her first ophthalmology appointment today. There is a strange feeling that goes along with parenting a child with Down syndrome. It’s sort of this “waiting for the other shoe to drop” thing. There are a lot of health concerns that can come with this extra little chromosome. There’s really no way to know […]
