Over the weekend we went camping with my family. It was a great way to relax, and it was a relief to be able to be outside and not feel like we were melting. In fact, we wore sweatshirts most of the weekend and it was a welcome change. There is a peace to being […]
Growing Up
It’s rare to have the opportunity to observe Rowenna in an environment she has spent a lot of time visiting without me. She attends a weekly playgroup run by her Montessori school and because I’ve been so sick, hubby has been taking her. Today was my first session in 5 weeks and what I saw […]
Drought
The blog has been silent for a while as I process something that happened last month. I didn’t want to write about it, but I find that by being silent on this one thing, I cannot find words to talk about anything else. By denying this one thing, I deny its impact on the rest […]
Control
I’m a planner. A list-maker. A logistics kind of gal. It’s how I control chaos in my life and how I cope with change. If something unexpected comes along, the rest of my ducks are in a row so it’s easier for me to handle the new situation. Then my sweet girl came along, and […]
The Single Story
Over the weekend I graduated from my Partners in Policymaking course. It was six months of training in political advocacy – at turns exhilarating, tedious, heart-wrenching. On our last day, we watched a TED Talk from Chimamanda Adichie about the danger of a single story. She doesn’t talk about disability specifically, but what she says […]
It Could Be Worse…
Blog hopping today over at With a Little Moxie. This week’s prompt is to talk about a phrase that really gets under your skin. Be sure to check out the other entries in the hop – this is not limited to just bloggers who have a Down syndrome connection, it’s open to any disability-related bloggers. […]
Two Year Check-Up
Rowenna has now had her second birthday party and her official two year well-baby visit. So, what are the vital stats for this kiddo? 24 pounds, 6 ounces and 33 inches of perpetual motion an infectious smile and a goofy little laugh walking with a push toy, standing without using anything for support or balance […]
Second Birthday
My sweet girl turns two today. I spent the night before her birthday reading through old blog posts and watching the video montage from her first birthday, in tears at how big she’s gotten and how big my heart has grown since she joined our family. I am amazed at how far we’ve come this […]
The State of Down Syndrome Today
Folks, it’s a double blog hop post today. I’m hopping with the T21 Traveling Afghan Project again, and a Special Needs and Disability blog hop hosted by With a Little Moxie. I’m using the prompt from the traveling afghan project, and if you’re interested in my connection to disability (the prompt for the other blog […]
Why It Matters
A few months ago, I wrote a post about using People First language. Sometimes this is seen as being nit-picky or too politically correct. You’re entitled to your opinion, of course, as I am entitled to mine. But here’s the thing – there’s a reason this stuff matters. It’s not about being politically correct, it’s […]
