Take a look at this picture: This is a little girl. This is a toddler. Here’s another: This is a little girl who has Down syndrome. And here’s another: This is not “a Downs,” “Downs,” or “a Downs girl.” There are a lot of things you can call Rowenna: happy, curious, beautiful, funny, clever. But […]
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Something New
I’m starting a second blog. I’ve been thinking about doing this for a while, but it wasn’t until I finished my first training session for Partners in Policymaking that I decided to go forward. So, I want to share a short story about what lit my fire for legislative advocacy, and then call it a […]
Another Love Story
This is a love story. A story about this beautiful little girl and the thing her dad did to help her out. A couple months ago, hubby and I started talking about an iPad for Rowenna. We knew it would take a while to save up for one (we had decided to go for the […]
That Mom
I found out last week that I’ve been selected for Wisconsin’s Partners in Policymaking program. (a little info here) It’s a 6-month training program to help people with developmental disabilities or family members of people with developmental disabilities be effective communicators and advocates at the legislative level. Graduates of this program have gone on to […]
18 Months
I have an 18 month old. Wowzer! Here are the vital stats: -29.5 inches and 19 pounds, 11 ounces -blonde hair that’s showing no sign of getting darker, despite both her parents being brunettes -saying dada, mama, cat, and more -signing more and dog -self-feeding like a little champion, willing to try anything – even […]
Guest Blog: Thankful I Am Not Alone
I have a bloggy friend who has an annual tradition of inviting guest bloggers over to her blog during November. The theme is “Thankful We Are Not Alone” and it’s eye-opening and heart-warming to read other takes on what that means. I guest blogged last year about the importance of understanding ourselves and each other […]
Thanksgiving 2011
Another trip around the sun and here I am, excited for another Thanksgiving Day. I love this time of year. I love the preparation, the hunkering down, the deep sigh as you cozy up your home and wait for winter to really settle in. I love to decorate my house for this holiday (including a […]
When There is Silence…
…go look for your bag of Pirate’s Booty. It’s possible your 17 month old has figured out how to pull up on the coffee table and reach things that used to be inaccessible to her. It’s also possible she won’t eat them one-by-one, delicately – she will dump the entire bag on the floor and […]
Reminders
The blog has been quiet for a while because I’ve been thinking about what to say. Big stuff is happening around our house. I’m back to work (evenings and Saturdays), hubby has been battling pneumonia, and after weeks of testing and worrying, we have an answer to Rowenna’s sleep issues. Our schedule has been overflowing […]
One Thing…Well, Maybe Two
This week’s topic is to write about one thing I wish people would get about Down syndrome. The kind of thing that makes me want to look at people and say “Get it, please!!!” Well, I have two. First off, Down syndrome is caused by a random genetic abnormality. Why do I consider this one […]
