While I was pregnant with Afton, who we knew then would be our last child, I re-read The Poisonwood Bible. There was a quote that leaped off the page and grabbed me with its truth, one that hadn’t struck me as significant in previous readings: A first child is your own best foot forward, and […]
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Privilege
We haven’t had Rowenna’s IEP meeting yet, but I want to pause here to talk about privilege for a minute. (And for those following at home… I do think things will end well after the meeting next week.) In the last week, I have become acutely aware of the amount of privilege I have when […]
Pop
Hear that? It’s the sound of my balloon bursting. Until now, we have had an amicable relationship with our school district. We felt very in sync with their suggestions for Rowenna, and we loved her placements for the last two years. We know many children who have various diagnoses, and many of them did an […]
Autism, Rowenna Style
As Autism Awareness Month draws to a close, I thought I would post about why we pursued further testing and what autism looks like for Rowenna. Disclaimer: we are still learning about autism and Down syndrome. For resources, please check out The Down Syndrome-Autism Connection and this fantastic book about the dual diagnosis. For a […]
“I Want Ball” – A WDSD Reflection
March 21 is World Down Syndrome Day. Some celebrated by wearing “wacky” socks as a conversation starter. Some performed random acts of kindness, leaving behind little calling cards describing the purpose of WDSD. Others participated in the Day in the Life campaign, an ongoing project collecting stories about life with Down syndrome, preferably in the […]
Welcome
We’ve been doing a lot of treading water in my family these days. Rowenna’s therapy has been incredibly transformative (more in future posts) but exceptionally time-consuming. Afton has been on her own diagnostic journey, which has left us with a lot of bills and not much in the way of answers, and has a sleep […]
Windows
Truth be told, one of the hardest things about the last year has been watching Rowenna slowly slip away. Where she used to want hugs, seek comfort, imitate signs and sounds, we watched her retreat into her mind and didn’t know how to help her. A month into therapy and two months into the school […]
Down Syndrome Awareness
October is Down Syndrome Awareness Month. So, let’s get that bit out of the way: Down syndrome is a thing, my oldest child has it, so…be aware. This month, social media will be flooded with extra pictures of people with Ds and many will choose to share facts and figures. That is good, but I’m […]
End of Summer
Nothing profound here, just an update on what keeps us busy these days. I love this time of year. The sun gets a bit hazier, the nights a bit cooler, and there is a pleasant buzz in the air as families lock into the school year routine. There is a hopefulness and a certain kind […]
The Plan
First things first: earlier this month, Rowenna received an official autism diagnosis. We knew it was probably going to happen, but having a folder full of information thrust into our hands and then a month of calling therapy providers and chatting with various insurance reps made it a bit more concrete. This has been a […]
