Tag Archives | Down syndrome


So. Apparently there is a lot of ignorance and even hatred out there about individuals with Down syndrome. I’m sure I’ll blog about this again at some point, but I want to put this out there now. I want to talk about how this feels after 16 weeks. When we received Rowenna’s diagnosis, I was […]

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Rowenna’s Heart

This is a well-known poem by e.e. cummings, but it’s been rattling around in my mind since last week. i carry your heart with me (i carry it in my heart) i am never without it (anywhere i go you go, my dear; and whatever is done by only me is your doing, my darling) […]

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Someone Said It Out Loud

Today was the first time a stranger asked, point blank, if Rowenna has Down syndrome. Woah. That was a strange feeling. I am totally aware that my child has Down syndrome and has some of the physical characteristics. When I look at her, I just don’t see it but I know they are there and others see […]

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Our Weekend

This weekend was our first camping trip with Rowenna. It was also the first time we spent an extended period of time with “typical” children since our daughter was born. Rowenna did well with her first camping trip. She tolerated being bundled up (and then some!) and went willingly from person to person for snuggles. She […]

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Perfect Chord

The following was in my DayBook for September 2: “The diversity in the human family should be the cause of love and harmony, as it is in music where many different notes blend together in the making of a perfect chord.” -‘Abdu’l-Baha One of the things that first drew me to my faith was this […]

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The manner in which we learned our daughter’s diagnosis is still a sore subject for us. During my pregnancy, the quad screen showed an elevated risk for Down syndrome – 1 in 227.  High, but not earth-shattering by any means. Two different ultrasounds showed no soft markers, and we were sent into the last 20 […]

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Beautiful Morning

Yesterday we had new windows installed in our bedroom. We live in 104 year old house and the previous windows were beyond repair and the glass was thick and dingy. This morning I woke up to miraculous sunlight filling the room. Everything looked so fresh and crisp and clean. It was like seeing the room […]

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My Kid Comes with an Instruction Manual

I hear a lot of jokes about kids not coming with instruction manuals. Fathers who eye up their children with that unique mix of awe, fear, and love that comes only with fatherhood and joke that life would be easier if their kids came with a manual. Mothers who sigh when the hundredth soothing technique […]

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